Hi, I’m Brett, the AuDHD Boss. As an autistic leader with ADHD and over a decade of experience in corporate leadership, I create content to support neurodivergent individuals in the workplace. Today, I’m sharing my personal journey through the adult autism evaluation process. This post details my experience from initial self-assessment to formal diagnosis, shedding light on the challenges and insights gained along the way.
Why a Formal Diagnosis?
At age 40, I was already exploring an ADHD diagnosis when a friend introduced me to resources that resonated deeply. These conversations prompted me to reflect on my own experiences and take a self-assessment for ADHD. As I researched further, I encountered the significant overlap between ADHD and autism traits, leading me to consider the possibility of being autistic.
While self-diagnosis is a valid and empowering option—especially given the high cost and inaccessibility of formal evaluations—I felt a formal diagnosis was crucial for me. It provided clarity and validation, and it also equipped me with the necessary documentation to seek workplace accommodations and tailored support.
Finding Resources and Starting the Process
One invaluable resource I discovered was Embrace Autism, a comprehensive platform offering research, self-assessments, and diagnostic services. Since local psychiatrists in my area had long waitlists (and this was during the pandemic), I began my evaluation journey with Embrace Autism. Their process involved:
- Detailed questionnaires about personal experiences.
- A series of cognitive and behavioral tests.
- Essays detailing life examples related to autistic traits.
While my insurance didn’t cover these assessments (as Embrace Autism is based in Canada), I was fortunate to afford the initial phase. The information I gathered from them became instrumental when transitioning to a local psychiatrist for the final steps of my diagnosis.
The Evaluation Process
The formal evaluation with a local psychiatrist spanned several months and included multiple steps:
1. Initial Consultation and Questionnaires
The first session involved an extensive one-on-one conversation where I shared my lived experiences and the reasons I believed I might have autism and ADHD. I also opted to include OCD in the evaluation based on my symptoms.
2. Informant Input
My psychiatrist asked if I wanted someone close to me—such as a friend or family member—to complete a questionnaire about their observations of my behavior. This was enlightening, as my best friend’s responses revealed significant differences in how they perceived me versus how I perceived myself, highlighting the extent of my masking.
3. Cognitive and Behavioral Testing
The next session was a half-day assessment with a variety of tasks:
- Memory Tests: Recalling lists, images, and sequences.
- Sensory and Emotional Tests: Matching facial expressions to vocal tones.
- Problem-Solving Tasks: Completing puzzles and timed challenges.
The assessments tested short- and long-term memory, emotional recognition, and executive functioning. While some tasks caused anxiety, they provided a comprehensive view of my cognitive strengths and challenges.
4. Observational Factors
The psychiatrist also observed how I presented myself during testing—fidgeting, body language, and conversational tendencies were all noted.
5. Validation by a Second Professional
The results were reviewed and validated by a second doctor, ensuring the findings were thorough and accurate.
Receiving the Diagnosis and Report
After months of anticipation, I received my formal diagnosis: autism, ADHD, and OCD. My psychiatrist walked me through a detailed report that explained the findings, the testing process, and recommendations for next steps. This document has been a cornerstone for understanding myself better and advocating for accommodations in the workplace.
Reflections and Insights
- The Value of Professional Input: While self-diagnosis is valid, a formal evaluation provided me with deeper insights into my neurodivergence and tailored strategies for success.
- The Importance of Resources: Platforms like Embrace Autism made the journey more accessible and helped me take meaningful steps toward diagnosis.
- The Complexity of Masking: Even those closest to me didn’t fully see the extent of my autistic traits due to years of masking. This realization was both eye-opening and liberating.
Moving Forward
Since receiving my diagnosis, I’ve continued learning about autism and ADHD. My evaluation report remains a valuable reference, helping me navigate challenges and advocate for myself. As I explore workplace accommodations, I revisit the findings to tailor my approach.
For Those Considering a Diagnosis
If you’re contemplating an evaluation, know that it’s a deeply personal decision. Self-diagnosis can be empowering, and formal diagnosis may offer additional clarity and resources. Take the time to research your options, and don’t hesitate to seek support from trusted resources or professionals.
Do you have questions about navigating neurodivergence in the workplace or the evaluation process? Leave a comment or check out more of my content for insights on autism and ADHD in professional environments.
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